(no subject)

[lsanderson]

I went to the ALS clinic with my aunt and four of her friends, Patty, Barb, Stan, and one other whose name I don't remember. Five and a half hours later, I was wandering around in the parking lot looking for my car. I think we got a hospital bed for her townhouse until she moves, and a hospital bed after she moves. Plus a new wheelchair, and they're going to do an onsite visit to determine if she should get a motorized wheelchair at Jones-Harrison. (The ALS Society provides these for free if they've got them.) More access to doctors and information than much else. The physical therapist was exceptional. It was a long morning.

The downside was that the Dr. said the rate seems not to vary. I'd take this to mean that the advance will be fast and furious, since her symptoms seem to be increasing at a fast rate.

Two of the drs. Talked about feeding tubes and breathing machines. I don't think Sandy's very wild about either.

I'm really hoping the assisted living works out for a few months. We pretty much stopped looking at nursing homes after we visited Jones-Harrison. It just seemed so right for Sandy.